Red and the Big Bad Wolf

The story of me – Red living with Myasthenia Gravis or the 'Big Bad Wolf' as I prefer to call it

Every year in June there is a targeted effort by the myasthenia gravis community to spread awareness about this rare disease. There are however many people and communities that strive to do this every day.

In order to do my part and to spread more awareness I have created a Facebook page ‘Myasthenia Gravis – Red and the Big Bad Wolf.’ It would mean the world to me if you would like my page and help to spread awareness. You never know who it might reach and more importantly help. Especially those that have not been diagnosed, have been wrongly diagnosed, or struggling with mysterious and debilitating symptoms.

You can find my Facebook page at https://www.facebook.com/redandthebigbadwolf/ You can also follow me on Twitter on @ItsRedRidingH.

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You can search for the following hashtag #IhaveheardofMG on Twitter in order to read and share tweets about myasthenia gravis. Do follow the wonderful creator of the #IhaveheardofMG campaign on Twitter on @ihaveheardofmg.

I also suggest that you follow the inspiration behind ‘Myasthenia Gravis Unmasked’ on Twitter on @RebekahDorr or on Facebook on https://www.facebook.com/mgunmasked/

Then there is my biggest inspiration and snowflake shoulder to lean on. Someone that I am honored to call my friend that you must follow on Facebook  – Retha. You can find her on https://www.facebook.com/chronicallytwentysomething/

I will leave you with a brief explanation of myasthenia gravis (MG) and its primary symptoms. ‘Myasthenia gravis (pronounced My-as-theen-ee-a Grav-us) comes from the Greek and Latin words meaning “grave muscular weakness.” The most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups.’ (Courtesy of the Myasthenia Gravis Foundation of America http://www.myasthenia.org/) The most common symptoms of myasthenia gravis are:

  • A drooping eyelid
  • Blurred or double vision
  • Slurred speech
  • Difficulty chewing and swallowing
  • Weakness in the arms and legs
  • Chronic muscle fatigue
  • Difficulty breathing

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Wishing you good health and happiness. XO

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