Red and the Big Bad Wolf

The story of me – Red living with Myasthenia Gravis or the 'Big Bad Wolf' as I prefer to call it

The previous blog post about my diagnosis journey ended where I was finally diagnosed with Myasthenia Gravis. I was elated to finally know what has been wrong all along and to treat it, even though Myasthenia Gravis is a horrible and dibilitating disease to have. It is bittersweet to get an accurate diagnosis. You are relieved …

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We left off in July 2013 where I was on medical leave and my health had deteriorated again to the point where I had to see a doctor again. And again it was Dr. M. My core symptoms were the same, but more symptoms were popping their ugly heads out! I had the normal weakness, numbness, …

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As promised I will share bits of information about myasthenia gravis or MG for short. 😊 The below provides a good graphical view of this neuromuscular autoimmune disease that affects the voluntary muscles in the body. It also gives a brief explanation of why myasthenia gravis is often referred to as the snowflake disease and …

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We left off upon my return from my initial hospitalization. I was supposed to be back at work, however I was at my Mom’s house in bed feeling worse than ever! I was however working from bed as any good employee would – note the sarcasm. I eventually phoned Dr. Z – the neurosurgeon – to …

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I really want to share my diagnosis story. It is by no means unique if you listen to the stories of other chronically ill people, but it should be told. Perhaps one person will read this story, recognize the symptoms and speed up their time to diagnosis. Perhaps one person will read this story and …

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